RESEARCH STUDIES

DYSTONIA STUDIES RECRUITING DYSTONIA PATIENTS– Sometimes we forget how fortunate we are to live in a part of the country where we have access to some of the best medical specialists for dystonia around, and also have the opportunity to take part in clinical research studies. The following research trials are looking for study participants. Clinical trials are always very valuable, both for the patients who receive quality medical care and products not yet available to the general public at no cost, but also because new and innovative therapies would never become FDA-approved without study participants. So, this is a win-win situation, where everyone benefits.

CLINICAL TRIALS IN SOUTHERN CALIFORNIA THAT ARE RECRUITING

UCLA DYSTONIA STUDY - Volunteers with all types of dystonia between the ages of 30-80 are needed for a research study at UCLA being conducted by researcher Dr. Michele Basso that explores the cognitive effects of movement disorders such as dystonia and Parkinson’s disease. The study involves one 2-hour visit to the Semel Institute for Neuroscience and Human Behavior. Subjects sit in front of a computer monitor and press a key or move their gaze in response to visual stimuli appearing on the screen. The study is non-invasive. The study aims to gather important information as to whether dystonia or Parkinson’s disease affect complex decision making, especially when the information available to make the decision is vague or uncertain. Participation in the study may help to gain a more in-depth understanding of dystonia and also lead to better treatments. Study subjects will be compensated for their time ($30 per session) and free parking is available. For more information, contact Alessandra Perugini at APerugini@mednet.ucla.edu or 310-825-0278. To learn more about the Semel Institute for Neuroscience & Human Behavior visit http://www.semel.ucla.edu/research

 

SCRIPPS LA JOLLA – DR. MELISSA HOUSER is conducting a Deep Brain Stimulation trial for Cervical Dystonia, OMD, Tourette's and focal dystonia. For more specific information, please call 858-554-8203.

*****************************************************************************

GENETIC STUDY. Volunteers are urgently needed!  Finding the genes for dystonia may be the key to understanding what goes wrong and how we can better treat or cure it. A collaborative team from Beth Israel Medical Center and Mount Sinai School of Medicine is conducting a study aimed at finding these genes. If there are two or more living individuals in your family with any form of dystonia (torticollis/cervical dystonia, blepharospasm, spasmodic dysphonia, writer’s cramp, generalized) please contact Deborah Raymond for more information about this important study. Participants will be asked to complete a short questionnaire and medical record release form, sign study consents, and give a blood sample. You do NOT need to live in or near NY to participate! Your information will be kept strictly confidential. You can help to unlock the mysteries of dystonia!  For more information please contact:                          

Deborah Raymond, M.S.
Department of Neurology
Beth Israel Medical Center
10 Union Square East, Suite 5H
New York, NY 10003
Phone: 212-844-6053; Toll-free 888-228-1688
Fax: 212-844-8710
E-mail: draymond@bethisraelny.org

 

1